RFTS is in the midst of several exciting new pediatric CP research projects with leading medical professionals and scientists around the country. We are involved with the NIH, CDC, AACPDM and are actively investigating various stem cell therapies and what might hold promise for children with CP.
Duke University Medical Center is conducting a study to test whether an intravenous
infusion of a child’s own cord blood stems cells, banked at the time of their birth, will lessen the
symptoms of cerebral palsy. Children, ages 12 months to 6 years, diagnosed with spastic
cerebral palsy may be eligible for the study if their cord blood cells were banked when
they were born. and 1 and 2 years later. RFTS is helping recruit for this clinical trial.
Please contact For more information about this study, call the Pediatric Blood and Marrow Transplant Program at (919) 668-1100.
We are also assisting the NIH in recruiting for their Leg Motor Coordination in Children with Cerebral Palsy RFTSNIHRecruitmentflyerCP1rev1229 . If you are interested in learning more, please click on the link. This study is focused on neural plasticity and how fast activity may improve brain and motor function.
We also continued our partnership with Dr. Jan Brunstrom-Hernandez, Washington University School of Medicine, and a team of leading investigators from around the United States as part of the “Baclofen Efficacy and Safety Trial – Pediatric Pharmacokinetic and Pharmacodynamic Study of Oral Baclofen for the Treatment of Spasticity Associated with Cerebral Palsy”. Recruitment for this clinical trial is now closed.
We are gratified to have parents, physicians and scientists working together to advance science and make a significant difference in the medical outlook for our children. RFTS will be closely involved in finalizing the data elements and forms to be used in several national research projects, serving as a liaison with other families, and encouraging family participation on a national level in these efforts.
Please refer to the Resources section of our website where you will find information about pediatric cerebral palsy clinical trials around the country, as well as resources you can turn to for more information both nationally and in your area.
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