Advocacy Update

We wanted to give you an update regarding our legislative and advocacy efforts. We’re continuing to do as much as we can to impact federal funding for national Cerebral Palsy research.

RFTS contingent with Iowa U.S. Senator Charles Grassley

RFTS contingent with Iowa U.S. Senator Charles Grassley

As you know, federal funding for national CP research does not currently exist despite the fact that CP is the most common motor disability in childhood, affecting over 800,000 Americans.

It is a serious and growing public health issue. We are working to change this, but we can’t do it without you.  Parents speaking up can make the difference.

The more parents, friends, family members and caregivers who speak up to their national lawmakers, the more responsive they will be. We continue to advocate for federally funded, national Cerebral Palsy surveillance and epidemiological research to be conducted by the CDC (Centers of Disease Control and Prevention), and new treatment research by the NIH .  Please Click Here  to see exactly what we’re recommending in terms of research and funding, and why.

Important Documents
RFTS Testimony RFTS Fact Sheet
Letters of Support for RFTS
United Cerebral Palsy Foundation AACPDM

Child Neurology Society

National lawmakers have emphasized the importance of parents raising their voices, writing letters to their Congressmen/women, Senators and the President expressing how important it is to have national Cerebral Palsy research become a recognized public health issue and research priority.  The more letters, phone calls, emails and faxes that are sent now during this critical budget time, the better chance we have to make a difference for children with Cerebral Palsy.

If you are interested in more information please call us at the phone number listed on our Contact Us page, reach us on Twitter at or email us. We would love to have more families involved. There are many ways you can help.

It’s not too late to add your voice. We can’t afford to be silent. We need to continue to speak up and let our national lawmakers know why we need more federally funded, national cerebral palsy research. We encourage you to use the main points in our Fact Sheet  to your Senators and Congressmen. One person really can make a difference!

Your phone calls, faxes and emails really do make a difference. Please let your voices be heard.

Why might you want to follow up with a phone call? There are thousands of new bills being introduced in Congress. There simply is not the time to review in detail all of these bills. There are hundreds (if not more than 1,000) health care related bills introduced in the Congress every year and a member usually has only one staffer partially dedicated to working on health care issues. National lawmakers need to know that CP research is important as they are making their funding decisions. Tell them that it is.

Please join us on our journey of hope and change. Thank you!

Reaching For The Stars. A Foundation Of Hope For Children With Cerebral Palsy
Advocacy in Action Committee