If you're a parent, caregiver, relative
or friend of a child with Cerebral Palsy

Please Read And Spread The Word...


Dear Friends,

Mark Your Calendars And Register Now for the 2006 CP Conference!!

The date for the 2006 National Parent and Medical Professional Cerebral Palsy Conference is July 28- 29th in St. Louis, Missouri.

This year, RFTS will be co-sponsoring this conference with Washington University School of Medicine and The Pediatric Cerebral Palsy Center At St. Louis Children's Hospital. We have an exciting line-up of topics and speakers including new research not previously presented to parents in this type of forum.

Please Click Here to view a downloadable version of the Conference Brochure and to register. Space is limited to 400 participants so don't delay. See you in July!


2006 is turning into a landmark year for RFTS and we want to thank all of you for your support of CP research. We are growing as a national organization and together we are making a difference on a national level. Our voices as parents of children with Cerebral Palsy are being heard.

We continue to make significant strides in the area of advocacy. We have visited Washington DC twice since February and were invited to testify before the House Appropriations Subcommittee on Health and Human Services about the need for national surveillance and epidemiological CP research. Please visit our updated website to read more about our efforts and read the Congressional RFTS testimony delivered on March 30th 2006 by Dr. Janice Brunstrom, member of the RFTS Medical Advisory Board.

As Congressional budget deliberations are happening now, it is more important than ever to let your elected officials know CP research is important to you. The more letters, emails, faxes that are received in the next few weeks, the better the chance that national CP surveillance will become a reality. Please use feel free to use the main points in our DC Fact Sheet in your emails and letters. Speak up. It will only take a minute or two but will make a world of difference.

Not sure who to contact? The links below will help you determine the right elected officials to contact for your state and district. Letters to President George W. Bush would also be helpful.

http://www.congress.org/congressorg/home/
http://www.house.gov/writerep/
http://www.senate.gov/general/contact_information/senators_cfm.cfm
http://www.whitehouse.gov/contact/

Together, letís make 2006 the year we create real change for children with CP. Today, well over 800,000 Americans are impacted by Cerebral Palsy. We canít afford to be silent any longer.

If you are interested in starting a RFTS Chapter in your state, holding a fundraiser, donating or have other ideas to share please call or email us. We would love to hear from you.

Please join us on our journey of hope and change. Thank you!

Reaching For The Stars. A Foundation Of Hope For Children With Cerebral Palsy
Adovacy in Action Committee
www.reachingforthestars.org



 
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Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. --Margaret Mead


 

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