We are extremely excited about this year’s CP Awareness Day co-sponsored with the CDC. We have an incredible line-up of speakers including Miss Iowa USA, Abbey Curran, who has CP and will be competing in the Miss USA Pageant on April 11th in Las Vegas. Miss Curran will also be moderating the children’s panel. You can read more about how Abbey Curran is achieving her dream here. Don’t forget to register because space is filling up fast. Click here now to find out more details and to register for the event.
In addition, several of RFTS Medical Advisory Board members will be speaking on Tuesday March 25th including: Dr. Marshalyn Yeargin-Allsopp, Chief of the CDC Birth Defects & Developmental Disabilities Branch, will be sharing the latest CP prevalence numbers; Dr. Michael Johnston, pediatric neurologist at Johns Hopkins and Sr. Vice President of the Kennedy Kreiger Institute will be speaking about his leading-edge neural plasticity research; Dr. Diane Damiano, PhD PT, President of the AACPDM and leading researcher at the Washington University School of Medicine will be sharing her latest knowledge about the role of activity in children with CP. To register today, please email Melody Stevens | firstname.lastname@example.org. You can also register by phone at 404-498-3860.
Lunch is included and there is no charge to attend. Please spread the word to other parents, medical professionals, friends and family. This will be an inspirational day not to be missed.
RFTS in the News
“Reaching For The Stars” recently issued a press release about the recent CDC CP prevalence numbers published in the March issue of Pediatrics Magazine that you’ll want to be sure to read. Please click on the link below to view the press release and related documents, including the actual Pediatrics article that show the prevalence of CP is increasing. Find out how you can help by visiting www.reachingforthestars.org.
Senator Arlen Specter and Senator Bob Casey Support “National CP Awareness Day”
We are pleased to announce that Pennsylvania Senators Arlen Specter and Bob Casey made a wonderful floor statement about CP and are supporting a National CP Awareness Day thanks to the efforts of many RFTS parents and supporters. It's a very strong statement of support since there has never been a National CP Awareness Day previously and will be a huge stepping stone to future support among Washington lawmakers. Please take a minute to click on the link below and read the resolution and the Senators’ floor statement. Also, please take a minute to email your thanks to both Senators. It will take a very brief amount of time but pay big dividends for children with CP to know this matters to parents. You can find Senator Arlen Specter’s contact information here and Senator Bob Casey’s contact information here.
SENATE RESOLUTION 484--DESIGNATING MARCH 25, 2008, AS "NATIONAL CEREBRAL PALSY AWARENESS DAY"
Thanks to all of your support, momentum for national CP surveillance and epidemiological research is definitely picking up.
Keep checking our website for further updates.
See you on Tuesday, March 25th!