RFTS Announces Exciting Developments!
2009 will be a year of progress for children with Cerebral Palsy on several fronts. We are very excited to announce the launch of the RFTS “CP Kids Coalition” a wonderful new program that will bring together school age children with CP all over the U.S. and abroad for both friendship and input into policy. More details will be forthcoming soon. We are looking for at least 100 children from across the U.S. who would be interested and willing to participate by being willing to write a letter or two, share your story and what you like to do for fun, learn about other children with CP and possibly make a trip to Washington DC in the spring or summer. This is a great opportunity to make a difference and have your voice heard!
If you or your child are interested, please email us at firstname.lastname@example.org and include the subject line: "CP Kids Coalition" ...or you can always give us a call at our new 800 number below.
March is National CP Awareness Month! Stay tuned for a variety of activities that will be happening around the U.S. to increase awareness of Cerebral Palsy. March 20th will be our co-sponsored CP Awareness Day with the Centers of Disease Control in Atlanta, Georgia. Registration information will be forwarded to you soon.
RFTS is thrilled to announce that we are partnering with Dr. Jan Brunstrom-Hernandez and a team of leading investigators from around the United States as part of the national clinical trial - "Baclofen Efficacy and Safety Trial – Pediatric Pharmacokinetic and Pharmacodynamic Study of Oral Baclofen for the Treatment of Spasticity Associated with Cerebral Palsy". For additional information on this study and a list of participating sites please refer to the Resource Section of our website or click here.
RFTS is heading "Down Under"! RFTS joins the CDC and the AACPDM in co-presenting a workshop on Global Cerebral Palsy Trends, Research & Advocacy at the International Cerebral Palsy Conference in Sydney, Australia. As we work to develop a more global perspective and raise the awareness of pediatric Cerebral Palsy on a worldwide basis, we will keep you posted and would love your involvement. We will also be unveiling the RFTS CP Kids Coalition and other global initiatives at this meeting.
Mark Your Calendars for the RFTS/Washington University School of Medicine 6th Annual Parent Conference in St. Louis March 27th & 28. Click here for more details and to register. New topics and new speakers including education issues/IEP’s, inspirational stories and much more!
RFTS has a new phone number! Call 887-561-RFTS toll free from anywhere in the country to get information, get involved, offer a suggestion or ask a question.