Dear RFTS Families and Friends,

We are very pleased to announce that today, March 25, 2011 has officially been designated "National Cerebral Palsy Awareness Day" by the U.S. Senate (Resolution No. 75). Senator Johnny Isakson (R-GA) sponsored the effort, along with Senator Robert Casey (D-PA), via the efforts of RFTS over the past year.  National Cerebral Palsy Awareness Day has now been put on the National Health Observance Calendar permanently and we are thrilled to see so many organizations and groups around the country marking the day in a variety of ways that draw much needed attention to Cerebral Palsy.

The establishment of National Cerebral Palsy Awareness Day helps shine an important light on CP and those children and families impacted by it. Cerebral Palsy is the most common motor disability in childhood.  It is not a disease. It is not contagious. The latest statistics show that the Cerebral Palsy prevalence rate is approximately 3.3 per 1,000 births - more common in any year than many types of cancer, stroke, spina bifida or muscular dystrophy, and affects over 800,000 Americans.  In the majority of cases, the cause of CP and how to prevent it is still unknown, despite advances in genetics, obstetrics and neonatology.

There is currently NO federally funded national CP surveillance or causation research despite the number of children, adolescents and adults affected.

It is estimated that the lifetime care and medical costs for all people with CP who were born in 2000 alone will total more than $13.5 billion.  Dedicated research is needed to investigate the cause and best interventions for CP to help reduce this substantial burden.

Looking for some facts to share on Twitter?

We have plenty in our Twitter stream or see below for more ideas. You can also join the conversation on Twitter by using the hash tag: #CPAwareDay and #CPFacts. Some of our Tweets are as follows.  We'd love to hear more for you!

- #CPFact: Did you know CP is the most common motor disability in childhood? #CPAwareDay

- #CPFact: @CDCgov estimates that each year aprox 10,000 babies born in the US will develop cerebral palsy #CPAwareDay

- #CPFact: Did you know over 800,000 Americans are impacted by CP? #CPAwareDay

- #CPFact: Cerebral Palsy is NOT a disease, or contagious. #CPAwareDay

- #CPFact: Did you know there is no federal funding for national CP research despite its prevalence? #CPAwareDay

- #CPFact: Did you know that in the majority of cases the cause of CP is unknown? #CP AwareDay

We're working hard to change that in a variety of ways including collaborating with the AACPDM and CPIRF in several advocacy initiatives.

RFTS has been marking this month in a variety of ways.  We invite you to join us mark this day: Thank you for caring....and sharing!!...for kids with Cerebral Palsy.  Together, we WILL make a difference!
RFTS is on the front lines of pediatric Cerebral Palsy. The children with CP and their families are depending on the success of our efforts.

 


 

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Reaching for the Stars
3000 Old Alabama Road
Suite 119 - 300
Alpharetta, Ga. 30022
Phone: 877-561-RFTS